Putting it into Practice

Title: Advancing patient engagement: youth and family participation in health research communities of practice.
Author: Woodgate R, Zurba M and Tennent P.
Date Published: 2018
Reference: Research Involvement and Engagement 4:9
Are service users or carers authors: No/Not Known

Abstract: The involvement of patients in health research has resulted in the development of more effective interventions and policies in healthcare that respond to the needs of healthcare users. This article examines how working with youth and their families as co-researchers in health research communities of practice (CoPs), rather than just as participants, can benefit all involved. Health research (CoPs) promote an environment in which co-researchers have the opportunity to do more than just participate in the data collection phase of the research process. As co-researchers, youth and their families are able to participate, learn, and contribute to knowledge and building relationships that are designed to innovate and improve healthcare systems. However, in order to ensure engagement of youth and their families in health research that they find meaningful and rewarding, three factors have been identified as important parts of the process: promoting identity, building capacity, and encouraging leadership skills.

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Categories: journal article
researchers
children and young people
general principles of good practice
staff in research organisations

Date Entered: 2018/11/05

Date Edited: 2018/11/05

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