Abstract: Aim: To evaluate the first phase (22 months) of involvement in the I-Score Study, which is developing a patient-reported measure of barriers to sticking with HIV treatment.
Methods: A Montreal-based committee of ten people with HIV was set up to advise the study. Their involvement was evaluated by observing meetings of the committee, analysing minutes, and carrying out two focus groups and a survey.
Results: The authors describe how initially the meetings were mostly about information sharing and consultation, but later evolved to include greater collaboration. The patients involved rated their involvement highly. They suggested that important factors for success included, positive interactions, co-learning, making joint decisions about the involvement, and collectively managing issues of confidentiality.
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Categories: health impact on service users involved impact of public involvement journal article
Date Entered: 2018/11/26
Date Edited: 2018/11/26