Research project

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Title: Successful Consumer Involvement in Research: An evaluation using consensus generated criteria

Project timescale: From 14 September, 2001 to 01 March, 2003
(Added to website on: 24 June, 2002 - Date last updated: 20 April, 2007)

Source of funding:
Trent Policy and Practice R&D Programme, NHS Executive Trent

Aims: To generate a robust audit tool to measure the successful involvement of consumers in research.

Research designs used:

Methods used to collect data:
Questionnaire survey
Other (please specify): Nominal Group technique Delphi Process

Research project description: The objective of the research is to generate a robust audit tool to measure the successful involvement of consumers in research by: developing consensus among researchers and consumers on principles of successful consumer involvement in research, and developing consensus on measurable indicators of each principle. The developed audit tool will be used to identify NHS Projects which meet the agreed principles of successful consumer involvement in research, by carrying out a national postal audit of current or recently completed NHS Research projects.

Stages at which the public were involved:
Prioritising topic areas
Planning the research
Other: Advice and consultation in the pilot study, the above stages were also in relation to the pilot study.

Description of public involvement in research stages: Consumers were involved in prioritising and advising the pilot study. We currently have 3 consumers who will advise on different stages of this research project.

Training and support provided for either members of the public or researchers involved in the project:

Examples of ways the public have made a difference to the research project: Gave a consumer perspective on what issues to pursue at the stage of designing a pilot. Gave important advice and information re cultural issues.

Evaluating the impact of public involvement in the research:

Details of publications or reports resulting from the research: 1. R Telford., CA Beverley., CL Cooper and JD Boote. (2002) Consumer involvement in health research:fact or fiction British Journal of Clinical Governance, Vol 7, No 2; 92 - 103 2. J Boote., R Telford.and C Cooper (2002) Consumer involvement in health research: a review and research agenda. Health Policy 61: 213 - 236.

Was/is your project user controlled: Not Known

For further information on the project, please contact:
Ms Rosemary Telford
Project Leader
University of Sheffield ScHARR, Public Health
Regent Court
30 Regent Street
Sheffield
S1 4DA
r.telford@sheffield.ac.uk
0114 222 0754

Website: http://www.shef.ac.uk/~scharr/publich/research/coniv.html



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