Research project

Title: Coping with the onset of dementia

Project timescale: From 01 June, 1997 to 01 June, 2003
(Added to website on: 19 August, 2002 - Date last updated: 11 February, 2013)

Source of funding:
1. MRC (LC) 2. Studies undertaken by Alison Pearce and Mike van Dijkhuizen as part of their Doctoral training in clinical psychology.

Aims: To explore the coping strategies, both psychological and practical, used by people who are developing dementia in response to the onset of cognitive impairment.

Research designs used:
Study of views/experiences
Other:

Methods used to collect data:
Interviews
Questionnaire survey
Other (please specify):

Research project description: Qualitative studies using interpretative phenomenological analysis (a research method which investigates individuals' lived experience of events) with persons who have early-stage dementia and separate interviews with their spouses.

Stages at which the public were involved:
Designing the research instruments
(eg questionnaires, patient information sheets)
Prioritising topic areas
Planning the research
Other: Advising the lead researcher

Description of public involvement in research stages:

Training and support provided for either members of the public or researchers involved in the project:

Examples of ways the public have made a difference to the research project: 1. Providing ideas and insight about the kinds of issues to explore. 2. Advising on acceptability.

Evaluating the impact of public involvement in the research:

Details of publications or reports resulting from the research: Clare L 2002. We'll fight it as long as we can: coping with the onset of Alzheimer's Disease. Ageing and Mental Health, 6, 139-148. Pearce A, Clare L, Pistrang N 2002. Managing sense of self: coping in the early stages of Alzheimer's Disease. Dementia, 1, 173 -192. Further journal articles to be prepared

Links to Reports:

Was/is your project user controlled: Not Known

For further information on the project, please contact:
Dr Linda Clare
Lecturer in Psychology
Clincial Health PsychologyUniversity College London
Gower Street
London
WC1E 6BT
l.clare@ucl.ac.uk
020 7679 1844

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