Research project

Title: The experience of early-stage dementia

Project timescale: From 01 April, 1997
(Added to website on: 20 August, 2002 - Date last updated: 11 February, 2013)

Source of funding:
MRC; Open University

Aims: To understand the subjective experience of early-stage dementia (with a focus on Alzheimer's disease) from the perspectives of the person with dementia and the spouse/partner/caregiver. 2. To explore how this develops and changes over time.

Research designs used:
Study of views/experiences
Other:

Methods used to collect data:
Interviews
Questionnaire survey
Other (please specify):

Research project description: A series of qualitative studies using interpretative phenomenological analysis, a research method that explores individuals' lived experience.

Stages at which the public were involved:
Prioritising topic areas
Planning the research
Other: Advising lead researcher

Description of public involvement in research stages:

Training and support provided for either members of the public or researchers involved in the project:

Examples of ways the public have made a difference to the research project: Identifying and prioritising important issues. Ensuring acceptability. Providing feedback on written account.

Evaluating the impact of public involvement in the research:

Details of publications or reports resulting from the research: Clare L (In press) Managing threats to self: awareness in early-stage Alzheimer's' Disease. Social Science and Medicine. Clare L (In press). Developing awareness about awareness in early-stage dementia. Dementia Further Journal articles planned

Links to Reports:

Was/is your project user controlled: Not Known

For further information on the project, please contact:
Dr Linda Clare
Lecturer in Psychology
Clinical Health PsychologyUniversity College London
Gower Street
London
WC1E 6BT
l.clare@ucl.ac.uk
020 7679 1844

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