Research project

Title: Enhancing patient/family participation in research and clinical service development: Evaluating the case of stroke

Project timescale: From 01 December, 2004 to 01 November, 2007
(Added to website on: 29 July, 2005 - Date last updated: 20 April, 2007)

Source of funding:
Stanley Thomas Johnson Foundation

Aims: 1. To develop mechanisms for user participation in an established stroke research programme 2. To develop mechanisms for user participation in a stroke service modernisation programme; 3. To evaluate the processes of implementing mechanisms to promote user participation in stroke research and service development; 4. To evaluate the impact of user participation on stroke research and service development 5. To enhance theoretical understanding of evaluation of user participation in health research and clinical service development.

Research designs used:
Other: Ethnographic evaluation

Methods used to collect data:
Other (please specify): Patient observation, in depth interviews, monitoring of acitivites

Research project description: The study focuses on stroke research and care in south London where a large, ongoing and well established stroke research programme is already in place and where an ambitious programme of stroke service development has recently begun. It will develop and evaluate methods for enhancing user (patient/family) participation in two areas: stroke research and stroke service development; and it will assess the impact of participation on research and service development. The findings will have wider application, particularly in relation to engaging with older health service users and people with chronic disease.

Stages at which the public were involved:
Other: So far, developing a new study

Description of public involvement in research stages: So far, development of a new research proposal. Other activities are in the pipeline: for example we plan to engage with stroke register participants to develop new ways of disseminating results; to critique our methods of data collection; and to identify new priorities for research.

Training and support provided for either members of the public or researchers involved in the project:

Examples of ways the public have made a difference to the research project: This is one of the questions the study seeks to investigate

Evaluating the impact of public involvement in the research:

Details of publications or reports resulting from the research: Fudge N, Wolfe, C, McKevitt C. User involvement in stroke research: rational, examples and prospects. Cerebrovascular Diseases 2005 ; 19 S2: 129.

Was/is your project user controlled: Not Known

For further information on the project, please contact:
Dr Christopher McKevitt
Senior Research Fellow
Division of Health and Social Care Research Kings College London
Capital house
42 Weston Street
London
SE1 3QD
christopher.mckevitt@kcl.ac.uk
0207 848 6628

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