Research project
Title: Colitis Education and Support Programme (CESP)
Project timescale: From 01 July, 2000 to 01 June, 2003
(Added to website on: 04 May, 2001 - Date last updated: 20 April, 2007)
Source of funding:
National Lottery Charities Board
Aims: This study aims to compare passive dissemination of information materials with an active self-management group for patients with ulcerative colitis.
Research designs used:
Evaluation
Randomised controlled trial
Study of views/experiences
Methods used to collect data:
Focus groups
Interviews
Validated instruments eg Outcome measures
Questionnaire survey
Observation
Research project description: This is an RCT of two approaches to delivery of education and support, to patients with UC, in an outpatient setting. Primary outcomes are emotional and social well-being as measured by quality of life scales. An economic evaluation is included.
Stages at which the public were involved:
Prioritising topic areas
Planning the research
Managing the research
Other: It is possible that consumers will be involved in other stages as the study progresses.
Description of public involvement in research stages: The topic was identified through focus groups to set research priorities. Consumer members of the steering group have contributed to the definition of content and structure of the self-management programme, and to the design of patient recruitment procedures.
Training and support provided for either members of the public or researchers involved in the project:
Examples of ways the public have made a difference to the research project: Consumers have ensured relevance to patients of the content and methods of the self management programme.
Evaluating the impact of public involvement in the research:
Details of publications or reports resulting from the research: None as yet - will be available in due course from me as the contact person.
Was/is your project user controlled: Not Known
For further information on the project, please contact:
Ms Elaine McColl
Co Principal Investigator
Centre for Health Services Research, University of Newcastle
21 Claremount Place
Newcastle- Upon- Tyne
NE2 4AA
e.mccoll@ncl.ac.uk
0191 222 7260
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