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Engaging service users in the evaluation and development of forensic mental health care services
Ten service users will identify research priorities, design and carry out a research project with the guidance of experienced mental health researchers. It is envisaged that a qualitative auto-biographical approach will be taken.
Author: Jacqueline Davies - City University
Tel: 020 7040 5886. Email: j.p.davies@city.ac.uk
Meeting the mental health needs of young people with learning disabilities
This is a programme of research in which four projects are looking at four distinctive areas. The projects are in Scotland and England.
Author: Jill Davies - Foundation for People with Learning Disabilities
Tel: 020 78020348. Email: jdavies@fpld.org.uk
Website: www.learning disabilities.org.uk
Effective Involvement in Mental Health Services: Assertive outreach and the voluntary sector
The study took place in Bath and North East Somerset, Bristol, North Somerset and South Gloucestershire. It was a service user led project based at Bristol Mind, supported by the Big Lottery Fund. The study was mainly qualitative. Participants included people with serious mental health problems who were using NHS assertive outreach services or voluntary outreach services. People who had gone out of touch with mental health services were also included, as were carers/supporters and staff. The study was mainly qualitative. Participants took part in in-depth interviews or focus groups. Conversations were recorded, transcribed and analysed for themes.
Author: Rosie Davies - Bristol Mind
Tel: 0117 328 8796 (at University of the West of England). Email: Rosemary3.Davies@uwe.ac.uk
Website: http://www.bristolmind.org.uk
Endometriosis and cultural diversity: Improving services for minority ethnic women
(1) Focus groups with women from each of the minority ethnic communities included in the study to elicit community perceptions of endometriosis and related constructs of menstruation, fertility and motherhood (n= 42). (2) Semi-structured, in depth interviews with a sample of women aged 18-50 with a clinical diagnosis of endometriosis, (n= 29). Interviews explored their experience of living with endometriosis and access to healthcare and support. (3) Semi-structured interviews with a sample of health professionals providing care for women with endometriosis (n=8) to explore their perceptions of the needs of minority ethnic patients, and their information needs regarding culturally appropriate patient care. (4) Using the data obtained in the previous phases of the research and advice from community groups, user representatives and the project advisory group members, resource materials for patients and service providers were developed and piloted.
Author: Elaine Denny - Birmingham City University
Tel: 1213316035. Email: elaine.denny@bcu.ac.uk
Website: www.bcu.ac.uk
Older people and nurses working in partnership to improve care.
The project will use an action research approach to explore partnership working with older people volunteers and key change agents in 3 long term care facilities in Scotland. The older people volunteers (n=6) and practice development nurses will embark on an education programme together. They will examine practice in their own settings and develop priorities for change. They will work together at bringing about change. Data will be collected throughout about the process and outcomes of the partnership working.
Author: Belinda Dewar - Queen Margaret University Hospital
Tel: 0131 317 3575. Email: bdewar@qmuc.ac.uk
Joint Replacement
Who should have a joint replacement and when?
Author: Paul Dieppe - Medical Research Council Health Services Research Collaboration
Tel: 0117 928 7343. Email: p.dieppe@bristol.ac.uk
Medicines Management Project.
To test the feasibility of introducing an intervention process into the relationship between the Community Pharmacist, the patient and the General Practitioner and, secondly to evaluate as fully as feasibly possible the extent to which the aim of the process has been achieved. The intervention is to be piloted in a series of sites, selected according to agreed criteria, and focused on the needs of patients suffering from coronary heart disease.
Author: J.L. Dixon - Pharmaceutical Services Negotiating Committee
Tel: 01388 606141. Email: john.dixon@psnc.org
Website: www.psnc.org
Lay Assessors - Assessment of quality standards
Lay people (service users or carers) are recruited and trained to identify specified quality standards through interviews with service users and staff, observation and records' examination. Ratings of compliance are made and fed back to the Community Care Teams.
Author: Paul Dolan - Birmingham Social Services Dept
Tel: 0121 303 7225/4044. Email: Paul_Dolan@birmingham.gov.uk
Information and support needs during recovery from postpartum psychosis
A workshop in qualitative research methods took place over two days at the Centre for Excellence in Interdisciplinary Mental Health in Birmingham. Training in qualitative research and interview skills was provided. Then the study aims and objectives were defined by service user researchers (SURs) in collaboration with academics and an interview topic guide was constructed. During the training, SURs were taught about the process of obtaining informed consent and obtained signed consent from their interviewees prior to interview. SURs conducted one-to-one semi-structured interviews with each other about their experiences of recovery. Interviews were recorded and later transcribed by one of the SURs. Analysis was conducted by two SURs together with two academics.
Author: Clare Dolman - APP - Action on Postpartum Psychosis
Tel: 029 2074 2038. Email: join@app-network.org
Website: www.app-network.org
Exploring the risk of falls from the perspective of older people, carers and health and social care professionals.
This is a collaborative project between St George's Hospital Medical School, Sutton & Merton Primary Care Trust, the London Borough of Merton and Merton & Sutton Community Health Council. We will interview older people to find out what they know and understand about their chances of falling, what they would like to know, and what their preferences are for advice on preventing falls. We will conduct interviews with groups of carers to find out if the information and advice given to older people about falls is appropriate. We will also interview professionals to find out what the important issues are for them about falls prevention. Recommendations will be made about how guidelines and an implementation strategy on falls prevention could reflect the views of older people. We will set up a 'user panel' of older people and their representatives to help manage this research project and disseminate the findings.
Author: Sheila Donovan - Nursing Research Unit Kings College London
Email: sheila.donovan@kcl.ac.uk
