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Training for involvement in research
This workshop will be about the development of training materials and courses for service users and carers taking part in research. It will describe the REACT – REsearch in ACTion course and will also talk about training for staff in how to involve service users and carers in research and evaluation. Virginia Minogue has supported …
Would you like to learn more about, inclusive participatory, user led, research methods?
We are a Mental Health Service User Led Research Group based in Wolverhampton; we have been operational for approximately 4 years. We are a diverse group of individuals, members’ specialist research areas include: Obsessive Compulsive Disorder, Lesbian Gay Bisexual Transgender, Black Minority Ethnic and Women’s Mental Health issues. We came together as a group out …
The road to collaboration
Judy Beckett and Louise Bryant both work at the University of Leeds. Judy has used mental health services in the past. Louise works as a researcher and has involved service users in her research. Judy and Louise ran a research project which looked at whether it would help people to have an advocate with them …
Stroke services need to take account of cultural/religious issues to be equitable
People of south Asian origin are more likely to have a stroke and at a younger age than the general population, but a commensurate proportion do not use stroke services, which may indicate barriers to assess. Equitable stroke services need to take account of religious and cultural issues elicited through meaningful service user involvement. People …
Collective data analysis in palliative care research: Process and outcomes
This talk focuses on the data analysis stage of a research project, which was where we made sense of all the information we had gathered. The research was about people’s experience of living with life limiting conditions like cancer and heart failure, and what they thought about health and social care services. 25 people took …
For the people, by the people, with the people
The paper focuses on the journey of developing a participatory model for health and medical research. It is based on the experiences of the School of Population Health at The University of Western Australia and the Telethon Institute for Child Health Research in collaborating with the Health Consumers’ Council (WA) Inc, an independent community-based organisation, …
Carers involved in research
"I had to give up work to care, this makes me feel l have something to offer, it keeps my brain active" This initiative, the first in Northumberland, has not paid lip-service to carer involvement but has changed the relationship between the statutory organisation and the people it supports for the better in the spirit …
Risks and benefits of medicines: Who do you trust?
MHRA, in a previous incarnation, was somewhat secretive. That has changed. The views of patients and the public are now a priority. MHRA wants to hear their views and engage in discussion with them. It commissioned MORI (now Ipsos MORI) to research the views of both the public and healthcare professionals about risk, regulation and …