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Listening to the voices of service users and carers and making them count
Last year Bec and Kristina worked with Macmillan Cancer Support. They tried to find out how different organisations listened to the views of service users and carers, and then how these views were made to count. They also looked at how people with cancer had listened to the views of other people with cancer. The …
Taking part in a steering group for a non-pharmacological intervention clinical trial Taking part in a steering group for a non-pharmacological intervention clinical trial
The Alzheimer’s Society funds research through the Quality Research in Dementia programme (QRD) which, through the QRD Consumer Network, involves consumers in all stages of the selection and administration of the funded research. A proposal to address management of challenging behaviour in care homes for people with dementia was selected by QRD in 2002 and …
Getting started with involving the public in public health research
April 2004. An information sheet for researchers.
It’s our project! People with learning difficulties managing and doing research
We are a group of people with learning difficulties called the Learning Difficulties Research Team. The Department of Health asked us to find out all about good ways to involve people with learning difficulties in research. We are doing this by looking at what’s happened in 12 research projects funded by the government through the …
Knowing how: a guide to getting involved in research
September 2001. A guide for members of the public by Folk.us