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Our lives your learning
Involving people who use services and carers in social work education at the University of Bedfordshire. What is the workshop about? From September 2004 the training for social workers changed and the government said that people who use services and carers must be involved in the training. The University of Bedfordshire, formerly the University of …
The PRIME Project: The challenges of developing a user-focused research agenda for ME/CFS research
Chronic fatigue syndrome (CFS) or myalgic encephalytis (ME) can have an overwhelming impact on an individual’s life. The nature of the condition makes it difficult for individuals to make their voices heard through conventional channels of user involvement. It is recognised that ME/CFS needs a more user-focused research agenda. The PRIME Project (Partnership for Research …
Service user involvement in research: panacea or pretence
This presentation begins from an assumption that service users should be involved in research that evaluates the services they receive. The paper is based on working with young service users as co-researchers and other service user research projects. The paper will identify the claimed benefits and potential costs of such research. The benefits include better …
Training for involvement in research
This workshop will be about the development of training materials and courses for service users and carers taking part in research. It will describe the REACT – REsearch in ACTion course and will also talk about training for staff in how to involve service users and carers in research and evaluation. Virginia Minogue has supported …
Would you like to learn more about, inclusive participatory, user led, research methods?
We are a Mental Health Service User Led Research Group based in Wolverhampton; we have been operational for approximately 4 years. We are a diverse group of individuals, members’ specialist research areas include: Obsessive Compulsive Disorder, Lesbian Gay Bisexual Transgender, Black Minority Ethnic and Women’s Mental Health issues. We came together as a group out …
The road to collaboration
Judy Beckett and Louise Bryant both work at the University of Leeds. Judy has used mental health services in the past. Louise works as a researcher and has involved service users in her research. Judy and Louise ran a research project which looked at whether it would help people to have an advocate with them …
Stroke services need to take account of cultural/religious issues to be equitable
People of south Asian origin are more likely to have a stroke and at a younger age than the general population, but a commensurate proportion do not use stroke services, which may indicate barriers to assess. Equitable stroke services need to take account of religious and cultural issues elicited through meaningful service user involvement. People …
Collective data analysis in palliative care research: Process and outcomes
This talk focuses on the data analysis stage of a research project, which was where we made sense of all the information we had gathered. The research was about people’s experience of living with life limiting conditions like cancer and heart failure, and what they thought about health and social care services. 25 people took …