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National Institute for Health Research (NIHR)–wide learning and development for public involvement : working group report and recommendations (2015)
This report makes recommendations for improving learning and development for public involvement in research. It documents the activities of a working group established in 2013 to initiate a discussion around leadership in learning and development for public involvement in research across the National Institute for Health Research (NIHR). The recommendations are aimed at the NIHR on …
Developing patient and public involvement (PPI) at the Bristol Nutrition Biomedical Research Unit: The challenges of tailoring PPI
Abstract: The National Institute for Health Research (NIHR) Biomedical Research Unit in Nutrition, Diet and Lifestyle at the University of Bristol and the University Hospitals Bristol NHS Foundation Trust was launched in April 2012 and specialises in a diverse range of research areas including: nutrition, physical activity and lifestyle in men with prostate cancer; optimising …
Research agenda setting from the perspective of a highly diverse patient population with visual impairments or ophthalmological diseases
Abstract: Background: Patient involvement in research agenda setting has been studied in various initiatives. However, little insight is available on effective involvement strategies for both vulnerable, and for highly diverse and divided patient populations. Objective: To develop a research agenda for people with visual impairments or ophthalmological diseases, taking into account their specific needs for …
The launch of the NIHR Clinical Research Network: West Midlands ‘Patient, Carer and Public Involvement and Engagement’ (PCPIE) strategy
Abstract: The National Institute for Health Research (NIHR) Clinical Research Network: West Midlands ‘Patient, Carer and Public Involvement and Engagement’ (PCPIE) in research working group launched their PCPIE strategy on 6 March 2014. Development of this strategy required input from key regional patient and public involvement (PPI) stakeholders. Lay people, patients, carers, academic professionals and …
Reflections on carrying out research on the impact of PPI in cancer research
Abstract: This poster offers reflexive insights into conducting research about public and patient involvement (PPI) in research. It is based on the experience of conducting an interpretivist, qualitative social science research study, which aimed to explore perceptions of the impact of service user involvement on the usability of cancer research findings amongst researchers, service users …
Lay involvement in reviewing scientific research bids: Untangling three perspectives; the academic, the bureaucratic and the lay
Abstract: All National Institute for Health Research (NIHR) funding streams expect to see patient and public involvement (PPI) in every application they fund. Research Design Services (RDSs) are funded by the NIHR to help researchers develop their applications for national peer reviewed funding competitions. A service RDSs offer to researchers applying to nationally peer reviewed …
The Involvement Portfolio
Abstract: The Involvement Portfolio has been developed by the NHS R&D Forum Service User and Carer Working Group. It is a tool for those using health and social care services who are involved in voluntary or involvement activities such as consultation, committee membership, research and development, to record and provide evidence of their activities. Many …