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Who says service users want this research and what will they get out of it?
This workshop will provide short input for group discussion. It will consider how nationally service users’ views can lead to the identification of a research topic and become the basis of a research project, exploring the complex issues that are involved in bringing about change nationally and locally, based on such research findings. The focus …
A report on how the Medical Research Council Consumer Liaison Group has influenced MRC research in the early stages
The MRC is a national organisation funded by the taxpayer. It promotes research in all areas of medical and related science. The MRC established the CLG in 2000 to: (1) advise the MRC Council on the public’s perspectives on research, policy and strategy, (2) advise on how to involve the public in particular activities, and …
Consultants’ views on users? involvement in clinical research investigators
It is not known how many healthcare professionals and NHS managers within the South West London Cancer Research Network (SWLCRN) currently involve users in the research process or what role if any users could play within the research process. The SWLCRN Consumer Research Advisory Group felt it was appropriate to undertake a survey of consultants’ …
It’s our project! People with learning difficulties managing and doing research
We are a group of people with learning difficulties called the Learning Difficulties Research Team. The Department of Health asked us to find out all about good ways to involve people with learning difficulties in research. We are doing this by looking at what’s happened in 12 research projects funded by the government through the …
The development and evaluation of a collaborative model for Consumer Research Panels in Cancer Research Networks
The involvement of consumers in research is an increasingly important ethical and political priority. However, within Cancer Research Networks initiatives to involve consumers are at present unco-ordinated and existing links need to be developed to establish ways of building sustainable programmes of involvement. This paper will report on a joint initiative by the National Cancer …
Collaborative research with older gay men and lesbians
This paper examines a recently funded project into the needs of older gay men and lesbians in the Bournemouth, Poole and Dorset area, funded via a Community Fund grant. This is a joint project between Bournemouth University and Help and Care, a local voluntary sector agency working with older people and their carers. The paper …
Best practice in involving service users and carers in research: Confronting the issues and doing it for real
We aim to tease out the discrepancies between theory and practice when involving service users and carers in research and to make participants discuss the issues behind the reality of “meaningful involvement”. In order to achieve this, we will use our own involvement in collaboration with the local university. We are very aware that we …
Making decisions about how to apply what you’ve found out: Involving people with learning difficulties in a European research project
‘I like, I love’ is a research project that covers 6 European countries, looking for a new resource for people with learning difficulties around sexual health that is useful in all partner countries. This report from the researchers involved in the project will consider the professional involvement of people with learning difficulties. The report will …