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Creating a dialogue: Helping researchers put user involvement into practice
The North West Users Research Advisory Group (NWURAG) has been meeting regularly since 2000 with the aim of promoting the NHS policy of User involvement in R&D in the North West region. The Group comprises 50% lay members and 50% professionals (a mix of academics and health service personnel). The Group is supported by Health …
Best practice in involving service users and carers in research: Confronting the issues and doing it for real
We aim to tease out the discrepancies between theory and practice when involving service users and carers in research and to make participants discuss the issues behind the reality of “meaningful involvement”. In order to achieve this, we will use our own involvement in collaboration with the local university. We are very aware that we …
Undertaking palliative care research: Service users involvement
This paper will discuss a research project being undertaken in palliative care that includes the experience, knowledge and perspectives of service users throughout the research process. This inclusion is achieved via a research User Advisory Group that work with the researcher influencing all stages of the research. The research itself is concerned with the accounts …
A survivor – led evaluation of a survivor-led service
This workshop will present some information about the evaluation of the Leeds Survivor Led Crisis Service carried out by the team, under the following headings: Training: a developmental approach was taken to training to take into account the previous experience and skills of all team members; Mutual support and teamwork: we shall explore the issues …
Making decisions about how to apply what you’ve found out: Involving people with learning difficulties in a European research project
‘I like, I love’ is a research project that covers 6 European countries, looking for a new resource for people with learning difficulties around sexual health that is useful in all partner countries. This report from the researchers involved in the project will consider the professional involvement of people with learning difficulties. The report will …
Participants’ Assessment of Clinical Trials (PACT) scoping study: full report
December 2002. To explore the most appropriate way to produce and disseminate information on the quality of randomised controlled trials for potential participants.
Participants’ Assessment of Clinical Trials (PACT) scoping study: executive summary
December 2002. To explore the most appropriate way to produce and disseminate information on the quality of randomised controlled trials for potential participants.