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Briefing note three: Why involve members of the public in research?
As well as the practical benefits of helping to ensure research quality and relevance, the underlying reasons for involving members of the public in research are also informed by broader democratic principles of citizenship, accountability and transparency. [read more]
Briefing note two: What is public involvement in research?
INVOLVE defines public involvement in research as research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. [read more]
Using a focus group to inform research management decisions
Abstract: This presentation is an account of how the Public Health Research programme managed by National Institute for Health Research Evaluation, Trials and Studies Coordinating Centre (NETSCC) has piloted the use of a focus group to inform the decisions made by its Programme Advisory Board. I will explain: the Public Health Research (PHR) programme’s overall …
The impact of patient and public involvement (PPI) on NHS healthcare services: A systematic review of literature
Abstract: Background: There has been little research conducted on evaluating the impact of patient and public involvement (PPI) on healthcare services and the concept of ‘impact’ as it relates to involvement is unclear. It is a critical time to consolidate our understanding of PPI, identify key challenges and make recommendations to enable the area to …
Changing our worlds: Examples of user-controlled research in action
Abstract: Earlier this year Alison was commissioned by INVOLVE to look in detail at seven examples of user-controlled research. The report of this work is launched at the Conference, as is the film produced to accompany it. The examples demonstrate research carried out by service user-led organisations, disabled people’s organisations or organisations of patients set …
Impact: From techniques and measurement to values and philosophy
Abstract: There is now major concern to explore the impact of public and user involvement in research. The focus has so far been on measuring such impact to establish what value involvement adds and what benefits it may offer, for example, to research, policy change, service users and resarchers. This is important, but impact is …
Developing the evidence base of involvement
User involvement needs a robust evidence-base for its future development and for its continued funding. The current evidence-base has been reported as partial, conceptually limited, lacking a coherent structure and does not always address the impact of involvement or report this clearly. This paper will present the initial findings of a structured literature review which …