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A survivor – led evaluation of a survivor-led service
This workshop will present some information about the evaluation of the Leeds Survivor Led Crisis Service carried out by the team, under the following headings: Training: a developmental approach was taken to training to take into account the previous experience and skills of all team members; Mutual support and teamwork: we shall explore the issues …
Making decisions about how to apply what you’ve found out: Involving people with learning difficulties in a European research project
‘I like, I love’ is a research project that covers 6 European countries, looking for a new resource for people with learning difficulties around sexual health that is useful in all partner countries. This report from the researchers involved in the project will consider the professional involvement of people with learning difficulties. The report will …
Researching recovery : User involvement in data analysis
The paper will include an outline of the process involved in analysing and interpreting the data in a user led research project on recovery from psychosis. This will involve the explanation of the following stages : Stage 1 : the process of data analysis by user researchers using Interpretative Phenomenological Analysis (IPA) including reasons for …
Patient and carer involvement in NICE clinical guidelines: Building on the good, learning from the not-so-good
From their inception, Guideline Development Groups (GDGs) commissioned by the National Institute for Clinical Excellence (NICE) have included, as a minimum, two patient and/or carer members. This paper presents the findings of a project to evaluate the methods and impact of patient and carer involvement in the first clinical guidelines developed on behalf of NICE. …
National Evaluation of Sure Start – Involving parents in Sure Start local evaluations. Stories from the field
The National Evaluation of Sure Start (NESS) includes one module that supports the 524 Sure Start Local Programmes to carry out evaluations of their services, looking both at process and outcomes. Many programmes have adopted methodologies that include the training and development of parents to act as evaluators and researchers. NESS also acts as a …
Making a Difference:How the Alzheimer’s Society QRD Consumer network do it!
The Alzheimer’s Society Quality Research in Dementia (QRD) award-winning research grants programme involves consumers in all stages of the Research Cycle. Today a small group of QRD members, in emphasising the Identifying & Prioritising part of The Research Cycle, will demonstrate how the 150 strong UK networks of carers and former carers of people with …
Knowing how: a guide to getting involved in research
September 2001. A guide for members of the public by Folk.us