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Real community engagement: Ensuring effective patient and public involvement (PPI)
Abstract:We will outline an engagement model we have developed to gather information and views from diverse communities, throughout Northamptonshire. The method we use builds up a genuine relationship with a two-way dialogue from the outset. We will illustrate the engagement model with video footage including interviews from some of our events, which by their nature are diverse and show …
Crash, collide and bang? Using a community of practice approach to engage service users and develop resilience research and practice
Abstract: The ultimate goal to involving service users in research should be to promote health and well being and improve quality of life. Drawing on the experience and expertise of users of services helps to shape practice for the better. But let’s face it, sitting on committees, designing questionnaires or conducting interviews isn’t for everyone. …
Changing our worlds: Examples of user-controlled research in action
Abstract: Earlier this year Alison was commissioned by INVOLVE to look in detail at seven examples of user-controlled research. The report of this work is launched at the Conference, as is the film produced to accompany it. The examples demonstrate research carried out by service user-led organisations, disabled people’s organisations or organisations of patients set …
Keeping it personal: Retaining the voice of personal experience in the analysis of large, complex sets of data
Methods for involving patients and the public in research are well established, including roles on steering groups, in study design and data collection. But what happens to the voice of personal experience when large, complex sets of data are analysed? In a national study exploring how ‘self-care’ policy is implemented in mental health Trusts, people …
User led research – Writing a research question; get it right and the rest just follows!’
The workshop will use a training session with interactive exercises taken from the Research in ACTion (REACT) training package for service users and carers wanting to learn research skills to demonstrate that research can be both fun and a shared learning experience. The workshop will focus on developing a research question, defining a topic, and …
Is being ‘in the community’ being ‘part of the community’? The use of photography in research
We have been looking at how much people living in residential accommodation have contacts/networks/social capital within the areas they live. Initially we held focus groups at each of the units. We decided to adapt the technique used by a project called PhotoVoice to try and make it easier for people to participate in the project. …
An exploration of children’s views of prosthesis: Developing techniques to explore young children’s views
Our research involved children and young people who had limb deficiency/loss and explored their views of prostheses through face-to-face interviews. We were particularly interested in issues of appearance and choice with regards to prosthetic limbs. Only one previous study has explored satisfaction with children’s prostheses (e.g. Pruitt et al, 1997), and focused solely on parents’ …
Involving people in evaluating the policy for managing chronic conditions in Wales
This poster describes a project to involve people who have chronic conditions in evaluating new government policy which affects the services they receive. Chronic conditions include diabetes, arthritis, heart disease and respiratory diseases. People with chronic conditions will be invited to join a research network to work with an academic team from Swansea and Cardiff …