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Working together to deliver training on patient and public involvement in research
Abstract: For organisations that want to involve patients and the public in research, it can be difficult to find the time and the resources to provide training and support, particularly given the recent uncertain economic climate. Since 2009, Asthma UK and Alzheimer’s Society have taken a collaborative approach to delivering training to their supporters, focusing …
Mystery shop exercise
Abstract: The poster provides a summary of the results and recommendations of a ‘mystery shopper’ survey carried out at North Bristol NHS Trust (NBT) to find out how easy it was for patients to find out about clinical research opportunities. This replicated a national survey undertaken by the National Institute for Health Research (NIHR) of …
The Involvement Portfolio
Abstract: The Involvement Portfolio has been developed by the NHS R&D Forum Service User and Carer Working Group. It is a tool for those using health and social care services who are involved in voluntary or involvement activities such as consultation, committee membership, research and development, to record and provide evidence of their activities. Many …
The Citizen Scientist Concept: Building a research active community
Abstract: Public understanding of health research and access to information about local involvement opportunities is a widely recognised problem yet no simple solution seems to meet the public need. As the Citizen Scientist Project Public Advisory Group, our goal was to help people find out about health research in our local area and opportunities where …
Patient involvement in the development of a patient safety intervention
Abstract: Health service researchers are realising that patients can be an important source of knowledge in reducing avoidable harm and improving care, however, patients rarely have the means to share this information and may feel uncertain in doing so. Patients with kidney failure regularly require complex care in a range of environments but little is …
Patient and public involvement in translational research: Experiences in a UK Biomedical Research Centre
Abstract: Translational research aims to speed up the process of moving scientific research findings into clinical care for patients. The UK’s 11 Biomedical Research Centres have been funded to conduct translational research and are required to collaborate with patients and members of the public in this process. This presentation will discuss: What kinds of patient/public …
Establishing a committee to advance patient and public involvement within university departmental research and teaching activities
Abstract: The Department of Health Sciences, University of York is a large, multi-disciplinary and multi-professional department with an international reputation for research that improves health and healthcare. Involving members of the public is vital for designing and conducting effective research studies and teaching activities at the Department. We recently set up a committee of patient/public …