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Using social media for active public involvement in research
Abstract: INVOLVE recently undertook a project looking at the use of social media for public involvement in research. The project advisory group found that while there were resources on using social media for communication and engagement, there was less information avaiable on using social media for active public involvement in research. In addition to conducting …
“If it wasn’t there you’d know it wasn’t there, but how do you prove it?” Patient and public views on assessing the impact of PPI in research
Abstract; Evidence that patient and public involvement (PPI) makes a difference remains largely anecdotal and there are mounting calls for robust, critical evaluation. But how can we assess the impact of PPI, and should we assess it at all? In this paper we explore and discuss the views of 38 patients, carers and members of …
Health Education Reaching Out (HERO) Projects exemplify PPI as a catalyst to improved outcomes not an inhibitor
Abstract: HERO works with students, teachers and health professionals to investigate the best ways of getting health messages across to young people, communities, patients and their families. Active patient and public participation is a significant component of all HERO projects. This presentation will illustrate the different opportunities for stakeholder involvement showing how they can affect …
How to develop meaningful PPI to improve delivery on the Comprehensive Local Research Network (CLRN) network objectives
Abstract: The main theme of the poster will be ‘how to develop meaningful PPI to improve delivery on the Comprehensive Local Research Network (CLRN) network objectives’. This will include information about the ongoing work the CLRN are doing to identify and engage with patient groups within South London. London (South) sees Patient and Public Involvement …
Public involvement in the design and delivery of a diabetes risk reduction lifestyle intervention for people of South Asian origin
Abstract: Theme or key issue: People of South Asian origin are four times more likely to develop type 2 diabetes mellitus (T2DM) than their non-South Asian counterparts. Adopting a healthy lifestyle is known to greatly reduce the risk of developing T2DM however many people find this difficult to do. We set out to design and …
How Alzheimer’s Society used experiences of people with dementia and their carers to support a UK government initiative to prioritise dementia research
Abstract: This presentation and poster will showcase the ways in which people with experience of dementia have supported a UK government initiative to prioritise and improve dementia research. Delegates will learn about innovative techniques to bring together personal experiences of dementia alongside the scientific expertise of dementia researchers. This will provide discussion on the important …
Establishing a dedicated Research PPI Group in the NIHR CLAHRC LNR Rehabilitation Theme
Abstract: The NIHR CLAHRC for Leicestershire, Northamptonshire & Rutland Rehabilitation Theme is conducting a novel and ambitious programme of applied research in the field of rehabilitation for patients with chronic cardiopulmonary diseases. The benefits of pulmonary and cardiac rehabilitation are well established and embedded in national and international guidelines. Our research philosophy has been to …
What’s the evidence for? A critical reflection on the evidence base for public involvement in research (invoNET sponsored session)
Abstract:This workshop is organised by invoNET (www.invo.org.uk/invonet/) to debate: what do we mean by the ‘evidence base’ on nature, extent and impact of public involvement in research? who are we trying to influence with this evidence? what are the purposes of the evidence base on public involvement in research? What could and should the evidence be …