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A guide to actively involving young people in research
September 2004. For researchers, research commissioners, and managers.
Getting started with involving the public in public health research
April 2004. An information sheet for researchers.
Developing partnerships for research: Training workshops for service users, carers workers and researchers
We will report on the development and evaluation of a series of five ESRC funded workshops designed to explore and develop collaborative working in mental health research. Through the workshops we aimed to provide participants with an introduction to the research cycle, and to explore meaningful ways of service users, carers, and researchers working in …
Who says service users want this research and what will they get out of it?
This workshop will provide short input for group discussion. It will consider how nationally service users’ views can lead to the identification of a research topic and become the basis of a research project, exploring the complex issues that are involved in bringing about change nationally and locally, based on such research findings. The focus …
A report on how the Medical Research Council Consumer Liaison Group has influenced MRC research in the early stages
The MRC is a national organisation funded by the taxpayer. It promotes research in all areas of medical and related science. The MRC established the CLG in 2000 to: (1) advise the MRC Council on the public’s perspectives on research, policy and strategy, (2) advise on how to involve the public in particular activities, and …
Undercliffe voices
This paper reports on the involvement of members of the public in the design of a survey on health needs. Participatory approaches to needs assessment are well recognised in the current UK context but the design of the research is often professionally led. The Undercliffe Voices project was carried out in an ethnically diverse area …
It’s not just a headache: the contribution of patient researchers to a qualitative study of migraine
This presentation focuses on the contribution of the patient researchers at the design stage. Originally the interviews were to be structured along the theme of the migraine “journey” and what milestones or stages of the journey were significant for the sufferers. After pilot interviews it became apparent, particularly to the patient researchers, that the idea …
It’s our project! People with learning difficulties managing and doing research
We are a group of people with learning difficulties called the Learning Difficulties Research Team. The Department of Health asked us to find out all about good ways to involve people with learning difficulties in research. We are doing this by looking at what’s happened in 12 research projects funded by the government through the …