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Involving people who use services and carers in social work education at the University of Bedfordshire. What is the workshop about? From September 2004 the training for social workers changed and the government said that people who use services and carers must be involved in the training. The University of Bedfordshire, formerly the University of …
The road to collaboration
Judy Beckett and Louise Bryant both work at the University of Leeds. Judy has used mental health services in the past. Louise works as a researcher and has involved service users in her research. Judy and Louise ran a research project which looked at whether it would help people to have an advocate with them …
Collective data analysis in palliative care research: Process and outcomes
This talk focuses on the data analysis stage of a research project, which was where we made sense of all the information we had gathered. The research was about people’s experience of living with life limiting conditions like cancer and heart failure, and what they thought about health and social care services. 25 people took …
The Research Assessment Exercise (RAE) and public involvement in research: can the tensions be reconciled?
The Research Assessment Exercise (RAE) determines funding allocation for university research – a major location of research activity. There are concerns that the RAE’s orientation is not consistent with increasing interest in public, patient and service user involvement in research/evaluation. Different RAE panels and subpanels approach this issue in different ways. Clearly it is important …
Research Jargon Buster
Research (and the NHS) can be full of jargon and very confusing when you don’t understand what the words mean. One group of people who found exactly that decided to write a jargon buster for other people trying to find out about and do research. The poster will describe the background to the Direct Impact …
Listening to the voices of service users and carers and making them count
Last year Bec and Kristina worked with Macmillan Cancer Support. They tried to find out how different organisations listened to the views of service users and carers, and then how these views were made to count. They also looked at how people with cancer had listened to the views of other people with cancer. The …
Taking part in a steering group for a non-pharmacological intervention clinical trial Taking part in a steering group for a non-pharmacological intervention clinical trial
The Alzheimer’s Society funds research through the Quality Research in Dementia programme (QRD) which, through the QRD Consumer Network, involves consumers in all stages of the selection and administration of the funded research. A proposal to address management of challenging behaviour in care homes for people with dementia was selected by QRD in 2002 and …