Archives: Conference
Understanding and improving Assessment Processes for Talking Therapies (APTT): A new user-controlled research programme
Abstract: Whilst user involvement in research has increased over recent years, it remains rare to find examples of National Institute for Health Research (NIHR) funded user controlled research. This poster will describe a five-year research programme that is being led and controlled by a service user researcher. It will explore the ways in which the …
Developing mobile applications for and with young people with long-term conditions learning to share their health-care with professionals: A young person and family-led approach
Abstract: Although young people are frequent users of mobile devices in day-to-day life, there is little reliable research that actually involves young people with long-term conditions as partners in the development and testing of mobile technology applications to support their health needs. However, the transition from child to adult health services means that young people …
Developing patient and public involvement (PPI) at the Bristol Nutrition Biomedical Research Unit: The challenges of tailoring PPI
Abstract: The National Institute for Health Research (NIHR) Biomedical Research Unit in Nutrition, Diet and Lifestyle at the University of Bristol and the University Hospitals Bristol NHS Foundation Trust was launched in April 2012 and specialises in a diverse range of research areas including: nutrition, physical activity and lifestyle in men with prostate cancer; optimising …
A game of science: The gamification of science literacy for hard-to-reach groups
Abstract: In a long-term project partnership between Manchester Metropolitan University and Parkinson’s UK, we are developing a distinct kind of engagement activity. Instead of teaching the public about a research topic, we aim to give the public the tools they need to understand any area of science or health research they wish to engage with. By …
Kidney Research UK: Developing better patient engagement in research – a pilot scheme within the dialysis community
Abstract: Kidney Research UK welcomes National Institute for Health Research’s (NIHR’s) OK to ask campaign and web-based engagement activity. However, discussions with its Lay Advisory Committees, patients and carers from around the UK highlighted the need to understand more about achieving effective engagement, responding to feedback and maintaining successful relationships. A more personalised approach supported …
Personal impacts on lay reviewers: A Research Design Service South East Exploration
Abstract: The Research Design Service South East (RDS SE) actively involves 9 lay reviewers in a variety of ways. Our dedicated team of reviewers can provide a lay review of research proposals, assessing the quality and appropriateness of the patient and public involvement (PPI) within them. The lay review service is provided as a standalone …
GRIPP 2: Developing consensus on the reporting of patient and public involvement
Abstract: GRIPP2 (Guidance for Reporting Involvement of Patients and Public) provides consensus-based guidance on reporting patient and public involvement, with the intention of enhancing the quality and transparency of the patient and public involvement (PPI) evidence base. GRIPP 2 has been developed in collaboration with the EQUATOR (Enhancing the QUAlity and Transparency Of health Research) …
Successfully involving service users and health care providers in a Cochrane systematic review of physiotherapy for people with stroke
Abstract: A systematic review of physiotherapy for people with strokeThere are several different theoretical approaches to the delivery of physiotherapy after stroke. How these are described and delivered can vary considerably. A Cochrane systematic review summarises the results of clinical trials, providing the best evidence on the effectiveness of healthcare interventions. We wanted to update …
A James Lind Alliance top stroke survivor priority leads to a PhD fellowship exploring the long term consequences of stroke
Abstract: Background: The shared Top 10 research priorities of stroke survivors, carers and health professionals were identified in a James Lind Alliance priority setting project in 2012. Number 2 in the Top 10 (and the top stroke survivor priority) was “How can we help people come to terms with the long term consequences of stroke?” …
Mighty oaks from small acorns grow: The development and maturation of public involvement in research in Hertfordshire
Abstract: The Public Involvement in Research (PIRG) at the University of Hertfordshire now forms an integral part of research activities within the institution. Over the last decade, the group has developed into a highly proactive, valued and experienced component of research activity within the Centre for Research in Primary and Community Care (CRIPACC). The PIRG …
Sheffield Motor Neurone Disease Research Advisory Group
Abstract: The presentation will be in the form of a poster and it aims to educate people about the group that is now supporting Motor Neurone Disorders (MND) researchers through Yorkshire and Humber to: Enable patient and carer perspectives to be included in research proposals Identify and prioritise research topics important to patients and their …
Research agenda setting from the perspective of a highly diverse patient population with visual impairments or ophthalmological diseases
Abstract: Background: Patient involvement in research agenda setting has been studied in various initiatives. However, little insight is available on effective involvement strategies for both vulnerable, and for highly diverse and divided patient populations. Objective: To develop a research agenda for people with visual impairments or ophthalmological diseases, taking into account their specific needs for …