Archives: Conference
Equipping service users/carers for research
Abstract: This presentation will explore how patient and public involvement in the National Institute for Health Research (NIHR)-funded EQUIP (Enhancing the Quality of User Involved care Planning in mental health services) research programme is being achieved. The presentation will address: the role of a pioneering research methods and design course for service users and carers …
Collaboration, coproduction and leadership: A decade of service user involvement in mental health research at St George’s
Abstract: CollaborationNow in our tenth year, service user involvement in mental health research at St George’s has always asked ‘what difference does it make?’ Our ‘detained patients’ work demonstrated that collaborative research has an important, measurable impact on how research is analysed and interpreted. We have produced guidelines for collaborative research – ‘Balancing Good Research …
Patient involvement in the development of a patient safety intervention
Abstract: Health service researchers are realising that patients can be an important source of knowledge in reducing avoidable harm and improving care, however, patients rarely have the means to share this information and may feel uncertain in doing so. Patients with kidney failure regularly require complex care in a range of environments but little is …
Avoidable acute admissions study: Exploring the contribution of patients and carers to innovative research designs
Abstract: Reducing the number of acute hospital admissions is something that can benefit patients and the NHS. This poster explores patient and public involvement (PPI) in a research study investigating how potentially unnecessary admissions might be avoided. The study used ethnographic methods to observe how these decisions are made in hospitals across South-West England. Observers …
Inclusive health research with people with intellectual disabilities: Towards assessing quality and added value
Abstract: The prevalence of and knowledge on inclusive health research with people with intellectual disabilities (ID) is increasing, due to demands by national policies, funding bodies and people with ID themselves. However, not everybody demanding inclusive health research experiences the same quality and added value. The aim of this research is to develop a tool …
Working in partnership: Delivering a 3 year plan for osteoporosis awareness and education
Abstract: The Department of Rheumatology has sucessfully been working with the Portsmouth and District Group of the National Osteoporosis Society (NOS) and has a proactive three year plan. The partnership working brings together health care professionals and the NOS to bring the patients’ and carers’ voice and experience to the heart of service development and …
Service user involvement in mental health research: Pathways to study success
Abstract: Mental health service users play an increasing role in the design and conduct of research. The Mental Health Research Network (MHRN) is the first organisation to accurately document service user involvement in research on a large scale. Using these data, we present the first evidence of service user involvement helping studies to recruit successfully. …
Engaging professional practitioners in patient and public involvement (PPI) in research
Abstract: As professional practitioners we aim to support patients with physical, social and spiritual needs. We found that staff knowledge about patient and public involvement (PPI) in research is variable. Staff who are research active are involving patients in their research projects, whereas others find it hard to put the concept into practice. We made …
A snapshot of engagement in research from Cheshire and Merseyside Comprehensive Local Research Network (CLRN)
Abstract: This poster will present early results from a piece of Action Research, set up to examine the extent of engagement for staff and patients in National Institute for Health Research (NIHR) research at six Trusts within Cheshire and Merseyside. Engagement in research is a keyperformance indicator of the NIHR (Department of Health (DH) 2011). …
Assessing the impact of public involvement: The MS Society Research Network
Abstract: It is widely assumed that public involvement provides many benefits to research; however, there is limited systematic analysis of impact, and ongoing debate about what we mean by the term. This poster outlines the process of defining “impact” within the MS Society Research Network (RN), and the subsequent development of questionnaires to gather information …
Can patients and the public influence primary care services? Working with patient and public representatives to explore their role
Abstract: Patient and public involvement (PPI) in primary care is a changed landscape following the 2012 health reforms and the Francis report. There are new PPI organisations with established and evolving roles for patients and the public. There is also discussion about the ongoing role and impact of PPI in individual general practices. All this …
From information, to interest, to engagement: A charity’s perspective on patient/public involvement in research
Abstract: This presentation will cover the role of a charity in increasing public awareness, interest and engagement with research. The Scottish Network for Arthritis in Children (SNAC) is a parent volunteer-led charity which supports families affected by Juvenile Idiopathic Arthritis (JIA). One aim of the charity is to ensure accurate, up-to-date information about research in …