Archives: Conference
The Citizen Scientist Concept: Building a research active community
Abstract: Public understanding of health research and access to information about local involvement opportunities is a widely recognised problem yet no simple solution seems to meet the public need. As the Citizen Scientist Project Public Advisory Group, our goal was to help people find out about health research in our local area and opportunities where …
Publishing an aphasia friendly booklet about stroke and clinical trials
Abstract: About a third of patients who have a stroke experience some degree of communication disability or aphasia. It is often difficult to recruit those individuals into clinical trials, because they have the same questions as people who are unaffected, but are unable to understand the trials literature that is often provided. Often it doesn’t …
Practical approaches to improve the quality, performance and experience of primary care research
Abstract: The importance of patient and carer input to the prioritisation of research topics and development and design of research studies is well established and as a research delivery service National Institute for Health Research Clinical Research Network (NIHR CRN) benefits from the active involvement of patients and carers in this. What is less well …
Researching with hard-to-reach groups: The role of PPI
Abstract: Research with hard-to-reach groups such as street-based sex workers (SSWs) can be challenging but is important and patient and public involvement (PPI) has a positive contribution to make to its success. Challenging Shifting populations Ethical approval Important Hard to reach groups tend to have significant complex health needs that mainstream services struggle to manage. …
Everyone included system: Research for all
Abstract: Avon and Wiltshire Mental Health Partnership NHS Trust (AWP)will become an ‘Everyone Included’ Trust on 17/3/14 – the first trust to take this approach! Everyone Included looks at how we provide people with information about research in AWP. We want to make sure that everyone has a choice about whether they receive information about …
PPI@ the next level: Presenting an innovation in public and patient involvement
Abstract: Key issues Initiating and maintaining patient and public involvement (PPI) in large programme grant research work The ‘standard model’ of PPI An innovative model of PPI. PhOEBE is a 5-year research programme funded by the National Institute for Health Research. It is led by the Universities of Sheffield and Lincoln in collaboration with East …
Perspectives on a student-stroke survivor research collaboration
Abstract: Four speech and language therapy dissertation students at the University of East Anglia and seven stroke survivors with aphasia have formed a research partnership, the Aphasia Research Collaboration (ARC). The group is supported by a lecturer and a patient and public involvement (PPI) experienced carer mentor. Members of ARC have worked together to develop …
Putting it into practice: Patient and public involvement in the development of user-friendly patient information sheets
Abstract: Informed consent to participate in research studies requires that all participants “should have sufficient knowledge and comprehension of the elements of the subject matter involved as to enable him/her to make an understanding and enlightened decision” (Nuremberg code, 1947). In practice this means that people should be given information which allows them to understand …
A public-led and multi-organisational approach to developing a learning and support programme for lay assessors
Abstract: Lay assessors contribute their own experience and independent view through reading and commenting on proposed research projects. They may help improve grant applications, study plans and patient information. In the East Midlands, we are developing a learning and support programme for lay assessors and for researchers interested in lay assessing. A ‘pilot’ of the …
A review of Research for Patient Benefit programme funding in relation to James Lind Alliance priority areas
Abstract: The National Institute for Health Research (NIHR) Research for Patient Benefit (RfPB) programme supports regionally derived, applied research projects in health services and social care in England. RfPB projects relate to day-to-day NHS practice in topic areas identified by clinicians and academics, often in partnership with service users. Since 2006, the programme has provided …
Establishing a research user group from the Greater Manchester Primary Care Patient Safety Translational Research Centre
Abstract: The Greater Manchester Primary Care Patient Safety Translational Research Centre is funded by the National Institute for Health Research for five years, to undertake research to improve patient safety in primary care. Approximately 8% of the £6.5million budget is devoted to public involvement and engagement as this as seen as fundamental to the whole …
Supporting engagement in research: The Salford Royal way
Abstract: Salford R+D is an integrated service overseeing research and development on behalf of the NHS in Salford. We have established an Engagement Team to complement the range of support services offered to the research community and to fulfil the requirements of involvement as laid out in the NHS constitution. The Engagement Team are on …