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A game of science: The gamification of science literacy for hard-to-reach groups
Abstract: In a long-term project partnership between Manchester Metropolitan University and Parkinson’s UK, we are developing a distinct kind of engagement activity. Instead of teaching the public about a research topic, we aim to give the public the tools they need to understand any area of science or health research they wish to engage with. By …
Successfully involving service users and health care providers in a Cochrane systematic review of physiotherapy for people with stroke
Abstract: A systematic review of physiotherapy for people with strokeThere are several different theoretical approaches to the delivery of physiotherapy after stroke. How these are described and delivered can vary considerably. A Cochrane systematic review summarises the results of clinical trials, providing the best evidence on the effectiveness of healthcare interventions. We wanted to update …
Sheffield Motor Neurone Disease Research Advisory Group
Abstract: The presentation will be in the form of a poster and it aims to educate people about the group that is now supporting Motor Neurone Disorders (MND) researchers through Yorkshire and Humber to: Enable patient and carer perspectives to be included in research proposals Identify and prioritise research topics important to patients and their …
Forming, storming, norming and performing: Developing an external PPI advisory group
Abstract: The poster content will include: The rationale for and mechanisms of forming an external advisory group supporting patient and public involvement (PPI). The issues concerning the recruitment of public contributors. The challenges of establishing a group of this type. Developing a high functioning group which has become a ‘critical friend’ to the organisation. The …
The Involvement Portfolio
Abstract: The Involvement Portfolio has been developed by the NHS R&D Forum Service User and Carer Working Group. It is a tool for those using health and social care services who are involved in voluntary or involvement activities such as consultation, committee membership, research and development, to record and provide evidence of their activities. Many …
Patient identified need as a driver for service and product innovation
Abstract: Securing greater patient and public involvement is a central theme of health policy in many countries (Coulter 2011) and is a growing healthcare phenomenon (Boote et al 2012, Staniszewska et al 2011, WHO 2006). However, the voice of the professional, in general, continues to have a stronger input and impact than that of the …
How can we use existing knowledge and evidence to facilitate patient and public involvement in a quality improvement programme?
Abstract: National Institute for Health Research (NIHR) Colloboration for Leadership in Applied Health Research and Care (CLAHRC) Northwest London facilitates a particular approach to healthcare improvement, with Patient and Public Involvement (PPI) being a core part. We believe involving patients leads to more appropriate and long-lasting improvements. We’ve observed improvement teams benefit from a facilitated …
The Citizen Scientist Concept: Building a research active community
Abstract: Public understanding of health research and access to information about local involvement opportunities is a widely recognised problem yet no simple solution seems to meet the public need. As the Citizen Scientist Project Public Advisory Group, our goal was to help people find out about health research in our local area and opportunities where …