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Searching for: Authors starting with M
Scoping study into lay involvement in research.
This is not a systematic review but a scoping study so a broad range of examples of lay involvement in research will be gathered through literature searches, sending questionnaires out to selected groups and contacting individuals known to be involved in this area of research in a number of different fields. 8 research projects will be examined in detail, including a face-to-face interview with the researcher and any other important stakeholders. The end product will be as in 'Aims of the Project'.
Author: Annie Mitchell - Folk.Us
Tel: 01392 264621. Email: a. mitchell@exeter.ac.uk
Sharing Value: Developing a web site and print directory of user commended support services for disabled children and their families.
Consultation groups of parents, children and practitioners (9 groups in total) . Were consulted at key stages throughout the project. Development of 3 postal questionnaires, one each for parents, children and siblings, sent to 15,000 families (approx) from the Family Fund Trust (FFT) database, asking for nominated services. Within the directory, some examples of services are described in greater depth. Families helped to shore-list and FFT Visitors visited these services.
Author: Wendy Mitchell - Social Policy Research Unit, University of York
Tel: 01904 433608. Email: wam1@york.ac.uk
Website: http://www.york.ac.uk/inst/spru/
Supporting the positive development and well-being of children and young people with limb loss: the influence of the appearance of the prosthesis and individual choice.
The research involves three studies: 1) a general questionnaire study, 2) informal interviews with children aged 5-10 years and 3) informal interviews with children and young people aged 11-18 years.
Author: Suryana Mohamad - University of Southampton
Tel: 02380598957. Email: sbm1f06@soton.ac.uk
Barrier Enhancement for Eczema Prevention - BEEP
The trial is a pragmatic, randomised, controlled, multi-centre, assessor blind, parallel group trial. A total of 1282 participants will be recruited over a 24 month period with five year follow up and primary outcome assessed at two years. Screening will take place either during pregnancy or soon after delivery during a face-to-face visit with the researcher. Families will be randomised within three weeks of delivery of their baby to one of two groups in a 1:1 ratio:- •Control Group: Parents given best practice infant skin care advice only. •Intervention Group: Parents given best practice infant skin care advice PLUS advice on how to apply emollient at least once a day for a year to their child’s skin.
Author: Amy Moody - Nottingham Clinical Trials Unit
Tel: 0115 8844926. Email: beep@nottingham.ac.uk
Development of a personalised medicine approach to corneal dystrophy.
Identification of corneal dystrophy causing mutations in Northern Ireland and subsequent design of therapies for them.
Author: Tara Moore - University of Ulster
Email: t.moore@ulster.ac.uk
Website: http://www.bioinformatics.ulster.ac.uk/Moore-Tara-Dr#page=background
Salford RAPAR Project : Developing Evidence about Needs and Action in Services with Refugees and Asylum Seekers.
A community development/PAR team of workers who are currently developing a volunteer layer all of whom are becoming involved in study design, data collection/analysis re presentation of findings and dissemination.
Author: Rhetta Moran - Revans Institute for Action Learning and Research
Tel: 0161 295 5277. Email: rmoran@salford.ac.uk
Website: revansinstitute.co.uk
Survey of views of people affected by Motor Neurone Disease on the only drug treatment available - Riluzole.
Qualitative research was carried out by the College of Health in November/December 1999. This was used to draft a questionnaire which was mailed with a membership publication in April 2000. 800 replies received.
Author: Alison Morris - Motor Neurone Disease Association
Tel: 01604 611842. Email: alison.morris@mndassociation.org
Website: www.mndassociation.org
Exploring the impact of user involvement on health and social care services for cancer in the UK
Macmillan Cancer Support in partnership with the NHS and service users has been active in supporting the development of user involvement in NHS cancer networks. The present study aimed to build on work from previous studies through a specific focus on outcomes and impact. The study combined analysis of written documents (such as annual reports) with in-depth case studies of five individual Cancer Network Partnership Groups across England, Wales and Scotland. The case studies focused on the way the groups connect with key people outside the groups and may influence the delivery of cancer services.
Author: Sara Morris - Lancaster University
Tel: 01524 592656. Email: s.m.morris@lancaster.ac.uk
Website: http://www.lancs.ac.uk/shm/dhr/
Involving children and young people in clinical audit.
The project began with individual interviews with 9 young people. This is being followed up with group sessions where the young people have helped to shape the agenda and carry out further research activities to test out their views and findings.
Author: Tina Moules - Anglia Polytechnic University
Tel: 01245 493131 ext: 49481. Email: c.t.m.moules@apu.ac.uk
Website: www.apu.ac.uk
MACA SURE (Service User Research and Evaluation)
The research team comprises of service users, a service user research Consultant (Peter Beresford) and the Co-coordinator. Aside form the original funding application service users have been involved fully in every aspect of the project from the recruitment of the Co-ordinator onwards. The research process and methods will be determined by service users with support provided by the Co-ordinator.
Author: Robin Murray-Neill - MACA (Mental After Care Association)
Tel: 01245 348732. Email: maca.anglia@dial.pipex.com
